Which is of course where it becomes double-edged as soon as you wake up feeling better than average.
Not better than the average human being, merely better than the run of fatigue, pain and brain-fog filled days that have gone before.
A serious temptation to celebrate and *do things* follows almost immediately. Just because they seem delightfully possible, and because there so much that has been put off or abandoned that could be usefully done, on this fine day.
It's a trap, I tell you, but how many films have we seen where characters (often minor, disposable) refuse to heed the warning or follow the sensible advice, and just don't stay where they are or don't leave that package alone, or any variant out of dozens.
Falling for it in this script doesn't generally mean getting written out, or off, even if one is wearing a red top; it just means getting reminded once again that there are penalties for crossing almost invisible lines.
My Aspergic side butts in here to remind me: "just like social interaction, then," and is not far wrong. Spotting these booby traps, learning to manage chronic fatigue, requires a whole new set of acquired skills. Acquired through the painful accumulated experience of setting off boobytraps, mainly.
There are no up-to-date, accurate and comprehensive maps or guidebooks.
And studying and learning new skills requires concentration and energy.
Catch number whatever.
Good game.
Next week it's pogo-sticks in minefields.
It can be a trap if you do too much, but if possibly also shows that your pacing is working. In that case I would think of it as more of a thin sliver of light. Not enough to read by perhaps, but just enough to show you were to go. Well done.
ReplyDeleteOh and my aspergergic side has only just realised that the reason I need to sit and zone out when I've been out, is because despite enjoying them, I find social interactions tiring. Huh, who have thought it?
ReplyDeleteHello Chris
ReplyDeleteI've read your mentioning that you have a serious health problem but I have no clue about its various manifestations. If as Ms. Rachel cotton comments even social interactions become tiring, I realise the great degree of caution I have to adopt.
I confess that I had a severe mental health problem from 1983 to 2004 and was variously diagnosed as 'schizophrenic' and later revised as 'manic depressive' and was on very potent medication for almost 25 years when a series of things happened that has lifted me from a state of sickness to good health and I have been relieved of all medication since 2009. But that's a long story and wonder if anybody would be interested.
Hello, here. If you read through a few post especially the earliest ones (oddly enough, when I was a bit better than I am now, you will get some idea of my life style and how this condition affects me. Basically near zero energy, or stamina, plus continual muscle or joint pain, of varying intensity. I am currently working with a routine of five minutes mild to moderate activity followed by fifty-five minutes rest. That for each and every hour. At most.
DeleteYes, I've had to cut back even on my barely existent social life... It drains, not recharges. When any more tired than average it also starts to affect typing, thinking, the ability to do routine activities without making an error. It's something you need insane amounts of optimism to cope with or my approach which is to bring a dark and twisted sense of humour into play.
(If this is Karma, wow, was I a naughty boy in my last life: pity I can't remember how much fun it was.)
So, a fair chance of a poor or wrong diagnosis and a fair change of being over-medicated if not wrongly medicated. Is there anyone in particular whose neck you would like to squeeze until their eyeballs pop out?
(there is a very nice relaxation method based on this approach... visualisation only, nothing illegal)
An interesting bunch of people with whom I can discuss almost anything, and who have far more experience than I of schizophrenia, bipolar disorder and related medications can be found at http://www.crazyboards.org/forums/ ( I have no involvement except as a satisfied loon.) Why not have a look and see if that looks a place that might suit, to discuss your past? ( Offering a universal cure there is likely to get you shot down in flames, but there is considerable respect for personal experiences and stories of all sorts.) Chris.